Archives of Gerontology and Geriatrics
Volume 53, Issue 2 , Pages e138-e143 , September 2011

Reactions to caregiving in frailty research

  • Christina Aggar

      Affiliations

    • Sydney Nursing School, University of Sydney, 88 Mallett St., Camperdown, NSW 2050, Australia
    • Corresponding Author InformationCorresponding author. Tel.: +61 414 754 705; fax: +61 2 9792 4346.
  • ,
  • Susan Ronaldson

      Affiliations

    • Sydney Nursing School, University of Sydney, 88 Mallett St., Camperdown, NSW 2050, Australia
  • ,
  • Ian Cameron

      Affiliations

    • Rehabilitation Studies Unit, Sydney Medical School, University of Sydney, PO Box 6, Ryde, NSW 1680, Australia

Received 22 March 2010 ,Revised 19 July 2010 ,Accepted 21 July 2010.

References 

  1. ABS (Australian Bureau of Statistics), 2004. Disability, ageing and carers, Australia: user guide 2003. Information paper. ABS cat. no. 4431.0.55.001. Canberra.
  2. Beach SR, Schulz R, Yee JL, Jackson S. Negative and positive health effects of caring for a disabled spouse: longitudinal findings from the caregiver health effects study. Psychol. Aging. 2000;15:259–271
  3. Berkman LF. The role of social relations in health promotions. Psychosom. Med. 1995;57:245–254
  4. Burton LC, Newsome JT, Schulz R, Hirsch CH, German PS. Preven-tative health behaviors among spousal caregivers. Prev. Med. 1997;26:162–169
  5. Carers Australia . Discussion Paper-The Ageing Population and Carers: Policy Implications of the Findings of the National Centre for Social and Economic Modelling study – “Who's Going to Care? Informal Care and the Ageing Population”. Canberra: Carers Australia; 2005;
  6. Carretero S, Garcés J, Ródenas F, Sanjosé V. The informal caregiver's burden of dependent people: theory and empirical review. Arch. Gerontol. Geriatr. 2008;49:74–79
  7. Cherniack EP, Florez HJ, Troen BR. Emerging therapies to treat frailty syndrome in the elderly. Altern. Med. Rev. 2007;12:246–258
  8. Cohen J. Some statistical issues in psychological research. In:  Wolman BB editors. Handbook of Clinical Psychology. New York: McGraw-Hill; 1965;p. 95–121
  9. Cohen J. Statistical Power Analysis for the Behavioural Sciences. 2nd ed.. Hillsdale, NJ: Erlbaum; 1988;
  10. Commonwealth of Australia, 2009. Who Cares...? Report on the Inquiry into better Support for Carers. Canberra.
  11. Covinsky KE, Eng C, Lui LY, Sands LP, Sehgal AR, Walter LC, et al. Reduced employment in caregivers of frail older elders: impact of ethnicity, patient clinical characteristics and caregiver characteristics. J. Gerontology. A: Biol. Sci. Med. Sci. 2001;56:M707–M713
  12. Cummins, R., Hughes, J., Tomyn, A., Gibson, A., Woerner, J., Lai, L., 2007. Australian Unity Wellbeing Index Survey 17.1: Special Report: The Wellbeing of Australians – Carer Health and Wellbeing. Deakin University, Australia, pp. 1–93.
  13. De Frias CM, Tuokko H, Rosenberg T. Caregiver physical and mental health predicts reactions to caregiving. Aging Ment. Health. 2005;9:331–336
  14. Deeken JF, Taylor KL, Mangan P, Yabroff KR, Ingham JM. Care for the caregivers: a review of self-report instruments developed to measure the burden, needs and quality of life of informal caregivers. J. Pain Symptom Manage. 2003;26:922–953
  15. Draper BM, Poulos CJ, Cole AM, Poulos RG, Ehrlich F. A comparison of caregivers for elderly stroke and dementia victims. J. Am. Geriatr. Soc. 1992;40:896–901
  16. Ekwall AK, Sivberg B, Hallberg IR. Older caregivers’ coping strategies and sense of coherence in relation to quality of life. J. Adv. Nurs. 2007;57:584–596
  17. Faul F. G-Power. Germany: Universitat Kiel; 2008;
  18. Field A. Discovering Statistics Using SPSS. 3rd ed.. London: Sage; 2009;
  19. Fried LP, Tangen CM, Walston J, Newman AB, Hirsch C, Gottdiener J, et al. Frailty in older adults: evidence for a phenotype. J. Gerontol. A: Biol. Sci. Med. Sci. 2001;56:M146–M156
  20. Given B, Sherwood PR. Family care for older person with cancer. Semin. Oncol. Nurs. 2006;22:43–50
  21. Given CW, Given B, Stommel M, Collins C, King S, Franklin S. The caregiver reaction assessment (CRA) for caregivers of persons with chronic physical and mental impairments. Res. Nurs. Health. 1992;15:271–283
  22. Grov EK, Eklund ML. Reactions of primary caregivers of frail older people and people with cancer in the palliative phase living at home. J. Adv. Nurs. 2008;63:576–585
  23. Henderson EJ, Caplan GA. Home sweet home? Community care for older people in Australia. J. Am. Med. Dir. Assoc. 2008;9:88–94
  24. Hintze J. PASS 2008, NCSS. Kaysville, Utah: LLC; 2008;
  25. Hirst M. Carer distress: a prospective, population-based study. Soc. Sci. Med. 2005;61:697–708
  26. Jacobi CE, Van den Berg B, Boshuizen HC, Rupp I, Dinant HJ, Van den Bos GA. Dimension-specific burden caregiving among partners of rheuma-toid arthritis patients. Rheumatology (Oxford). 2003;42:1226–1233
  27. Jenkins KR, Kabeto MU, Langa KM. Does caring for your spouse harm one's health? Evidence from a United States nationally-representative sample of older adults. Ageing Soc. 2009;29:277–293
  28. Johnson RW, Lo Sasso AT. The impact of elder care on women's labor supply. Inquiry. 2006;43:195–210
  29. Kaufman SR. The social construction of frailty: an anthropological perspective. J. Aging Stud. 1994;8:45–58
  30. Kosloski K, Montgomery RJW, Youngbauer JG. Utilisation of respite services: a comparison of users, seekers and nonseekers. J. Appl. Gerontol. 2001;21:111–132
  31. Lopez J, Lopez-Arrieta J, Crespo M. Factors associated with the positive impact of caring for elderly and dependent relatives. Arch. Gerontol. Geriatr. 2005;41:81–94
  32. Losada A, Perez-Penaranda A, Rodriguez-Sanchez E, Gomez-Marcos MA, Ballesteros-Rios C, Ramos-Carrera IR, et al. Leisure and distress in caregivers for elderly patients. Arch. Gerontol. Geriatr. 2009;50:347–350
  33. Masuy AJ. Effect of caring for an older person on women's lifetime participation in work. Ageing Soc. 2009;29:745–763
  34. Meiland FJ, Danse JA, Wendte JF, Klazinga NS, Gunning-Schepers LJ. Caring for relatives with dementia – caregiver experiences of relatives of patients on the waiting list for admission to a psychogeriatric nursing home in The Netherlands. Scand. J. Public Health. 2001;29:113–121
  35. Morgan DG, Semchuk KM, Stewart NJ, D’Arcy C. Rural families caring for a relative with dementia: barriers to use of formal services. Soc. Sci. Med. 2002;55:1129–1142
  36. Neville CC, Byrne GJ. Staff and home caregiver expectations of residential respite care for older people. Collegian. 2007;14:27–31
  37. Pearlin LI, Mullan JT, Semple SJ, Skaff MM. Caregiving and the stress process: an overview of concepts and their measures. Gerontologist. 1990;30:583–594
  38. Persson C, Wennman-Larsen A, Sundin K, Gustavsson P. Assessing informal caregivers’ experiences: a qualitative and psychometric evaluation of the Caregiver Reaction Assessment Scale. Eur. J. Cancer Care. 2008;17:189–199
  39. Pinquart M, Sorensen S. Differences between caregivers and non-caregivers in psychological health and physical health: a meta-analysis. Psychol. Aging. 2003;18:250–267
  40. Productivity Commission, 2008. Trends in Aged Care Services: Some Implications. Canberra.
  41. Rockwood K, Song X, MacKnight C, Bergman H, Hogan DB, McDowell I, et al. A global clinical measure of fitness and frailty in elderly people. Can. Med. Assoc. J. 2005;173:489–495
  42. Santos-Eggimann B, Karmaniola A, Seematter-Bagnoud L, Spagnoli J, Büla C, Cornuz J, et al. The Lausanne cohort Lc65+: a population-based prospective study of the manifestations, determinants and outcomes of frailty. BMC Geriatr. 2008;8:20
  43. SCARC (Senate Community Affairs References Committee), 2005. Quality and Equity in Aged Care, June. Canberra.
  44. Schulz R, Beach SR. Caregiving as a risk factor for mortality: the caregiver health effects study. J. Am. Med. Assoc. 1999;282:2215–2219
  45. Schumacher KL, Stewart BJ, Archbold PG, Dodd MJ, Dibble SL. Family caregiving skill: development of the concept. Res. Nurs. Health. 2000;23:191–203
  46. Shaw C, McNamara R, Abrams K, Cannings-John R, Hood R, Longo M, et al. Systematic review of respite care in the frail elderly. Health Technol. Assess. 2009;13:1–224iii
  47. Smith J, Forster A, House A, Knapp P, Wright J, Young J. Information provision for stroke patients and their caregivers. Cochrane Database Syst. Rev. 2008;16:CD001919
  48. Spillman BC, Long SK. Does high caregiver stress predict nursing home entry?. Inquiry. 2009;46:140–161
  49. Studenski S, Hayes RP, Leibowitz RQ, Bode R, Lavery L, Walston J, et al. Clinical global impression of change in physical frailty: development of a measure based on clinical judgment. J. Am. Geriatr. Soc. 2004;52:1560–1566
  50. Tabachnick B, Fidell L. Experimental Design Using ANOVA. Belmont, CA: Duxbury Press; 2007;
  51. Tabachnick B, Fidell L. Using Multivariate Statistics. 5th ed.. Boston: Allyn & Bacon; 2007;
  52. Tennstedt SL, Crawford S, McKinlay JB. Determining the pattern of community care: is coresidence more important than caregiver relationship?. J. Gerontol. 1993;48:S74–S83
  53. Van Exel J, De Graaf G, Brouwer W. Give me a break! Informal caregiver attitudes towards respite care. Health Policy. 2008;88:73–87
  54. Vecchio N. Understanding the use of respite services among informal carers. Rehabil. Disabil. Ageing. 2008;32:459–467
  55. Witt E, Chenoweth L, Jeon Y. Respite services for older persons and their family carers in southern Sydney. Collegian: J. R. Coll. Nurs. Aust. 2004;11:31–35
  56. Zarit SH, Femia EE. A future for family care and dementia intervention research? Challenges and strategies. Aging Mental Health. 2008;12:5–13
  57. Zarit SH, Gaugler JE, Jarrott SE. Useful services for families: research findings and directions. Int. J. Geriatr. Psychiatry. 1999;14:165–181

PII: S0167-4943(10)00207-4

doi: 10.1016/j.archger.2010.07.010

Archives of Gerontology and Geriatrics
Volume 53, Issue 2 , Pages e138-e143 , September 2011